MMA Cbl A

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Taryn

Our Kids  / Taryn MMA Cbl A, Age 22 Hi my name is Taryn and on January 30, 2000, I was born at 3:15pm at Jefferson Hospital in Philadelphia, Pennsylvania and weighed 7 pounds 1 ounce. When I was born,

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Our Kids

Matthew – ​MMA Cbl A

Our Kids  / Matthew MMA Cbl A Hi! My name is Matthew, I was born in Tucson, Arizona on February 3, 1971. My development was fairly normal. According to my Mom, I met developmental milestones on time, talked early at

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Our Kids

Amber (MMA Cbl A)

My name is Amber and I have MMA- CblA. My mom has written a few articles about me in previous issues when I was younger, but I thought I would share an update.

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Our Kids

Maeve

Our Kids  / Maeve MMA Cbl A We welcomed Maeve into our family on April 11, 2009, weighing 7 lbs, 2 ounces. She appeared to be perfectly healthy, and my husband and I took her home two days later. Around

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Our Kids

Connor

Our Kids  / Connor MMA, Cbl A My husband Peter and I live in Long Island, NY.  Our first child Connor was born on October 14, 2001.  He was 7 pounds, 3 ounces and 20 inches long.   He was without

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Our Kids

Tyler -MMA, Cbl A

Our Kids  / Tyler MMA, Cbl A My name is Tyler. I am 23 years young.  I was diagnosed with Methylmalonic Acidemia Cbl-A when I was 6 months old, after I had become very sick and fell into a coma.

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Our Kids

Sapien

Our Kids  / Sapien MMA, Cbl A Before giving birth to Sapien I had the most amazing, dreamy, perfect birth plan one could imagine.  No interventions, no medication, Bradley method classes, hired a Doula.  Well…long labor, difficult head presentation, 3

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Recent Post

flyer for webinar on GA1 natural history study on February 18, 2026.
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Abram & Asa, MMA Cbl B
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Elizabeth (age 9) and Morgane (age 7), Propionic Acidemia
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first page of the august 2025 OAA newsletter
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Emerald, Glutaric Acidemia, Type 1, Age 2
front page of the OAA Spring 2025 newsletter
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flyer for OAA webinar about introduction to ABLE accounts
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Jonathan, MMA Mut 0, Age 14
Eli, Glutaric Acidemia, Type 1, Age 3
Mead Johnson Formula Update – October 2024
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Jackson, Methlymalonic Acidemia, Cobalamin C, Age 9
Eithan, Propionic Acidemia, Age 2 – Ecuador
Luisa, Methylmalonic Acidemia Mut 0, Age 4 – Brazil
Thank you Sponsors!!
Upcoming Zoom Webinar – Meet our newest physician at the NIH!
Hope you can attend the 2024 FOD/OAA Family Forum
Ask Me Anything with flok!
Rare Disease Day 2024 – OAA Tshirt Fundraiser
3D avatar of woman with multicolored jumpsuit and chunky black boots
Update: My Newest Adventure – Michael Clapcich
Karli, Propionic Acidemia, Age 34
Raechel, MMA, Cobalamin C, age 20
Formula Shortage Survey
Holiday Fundraiser – Texas Roadhouse Gift Cards!
2024 OAA Fundraising Calendar Ready to Purchase!
Demo Derby Sibling Honors Brother and others with Organic Acidemias!
Meadow, 3-MCC
Leo – Isovaleric Acidemia, Age 20 months
Summer 2023 OAA Newsletter (Digital Version Available Now!)
Webinar Discussion on Liver/Kidney Transplant with other OAA Families
Join Us for a Dietician Talk-Exclusively for OAA Families
Update on the Rapid Blood Ammonia Testing Instrument
Katie – Glutaric Acidemia, Type 1
Cameron, Methylmalonic Acidemia, Cbl C, Age 6 years
Nolan, Propionic Acidemia, Age 18 months
Winter 2023 OAA Newsletter (Digital Version Available Now!)
Luca, Davide and Simone
Jose
Gabriel
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