Support Groups & Informative Websites

Condition Specific Support Groups

CurePDE Foundation

Committed to making a positive impact on the lives of individuals and families affected by Pryidoxine-Dependent Epilepsy (PDE).

International and Regional Support Groups

logo for metabolic Support UK

Metabolic Support UK

Metabolic Support UK is the leading organisation for Inherited Metabolic Disorders (IMDs) based in the United Kingdom.

General Rare Disease and Research Organizations

Medical and Research Societies

Genetic Organizations

Pharmaceutical Companies

Additional Resources

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