A Personal Story
Newborn Screening Websites
- What Does Your State Screen For? Newborn Screening in the US by State
- Baby’s First Test – Parent Information on Newborn Screening
- Mayo Clinic – Rochester, MN – Newborn screening
- National Newborn Screening & Genetics Newborn Center
- March of Dimes
- Centers for Disease Control & Prevention (CDC) Newborn Screening
- American College of Medical Genetics – Newborn Screening: Toward A Uniform Screening Panel and System
- Sudden Infant Death Syndrome (SIDS)
- Expanded Newborn Screening using Mass Spec
- Sudden Unexplained Death in Childhood (SUDC)
- Save Babies Through Screening
- Newborn Screening by Tandem Mass Spectrometry for Medium-Chain Acyl-CoA Dehydrogenase Deficiency: A Cost-Effectiveness Analysis Abstract of Article from Pediatrics, Nov 2003
By Kathy Stagni

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http://genes-r-us.uthscsa.edu/resources/genetics/StatePages/genetic_region_map.htm
In 2004, the Maternal and Child Health Bureau of the Health Resources and Services Administration (MCHB/HRSA), Genetic Services Branch (GSB) awarded grants to establish seven Regional Genetic Service and Newborn Screening Collaborative Groups (RCs) and a National Coordinating Center (NCC) as part of on-going efforts to improve the health of children and their families by promoting the translation of genetic medicine into public health and health care services. The NCC is formed as a partnership with the GSB/MCHB/HRSA through a cooperative agreement with the American College of Medical Genetics (ACMG). The NCC is organized around a central office and an Advisory Committee. The Advisory Committee includes the seven RCs and representatives of national organizations that serve as resources to the NCC and the RCs.
- New England Regional Genetics Group (Region 1)
- New York Mid-Atlantic Consortium for Genetic and Newborn Screening Services (Region 2)
- The Southeast Regional Genetics Group (Region 3)
- The Great Lakes Genetics Collaborative (Region 4)
- The Heartland Regional Genetics and Newborn Screening Collaborative
(Region 5) - The Mountain States Regional Collaborative Center (Region 6)
- Western States Genetic Services Collaborative (Region 7)