Winter 2023 OAA Newsletter (Digital Version Available Now!)
By oaanews
We are a 501c3 non-profit organization made up of parents of children with organic acidemia metabolic disorders. Organic Acidemias are a group of inheritable genetic metabolic disorders in which there is a defect in protein metabolism where an essential enzyme is absent or malfunctioning.
Our mission is to empower families and health care professionals with knowledge in these disorders. We support early intervention through expanded newborn screening, solicit contributions, and distribute funding that supports research toward improved treatment, and eventual cures in the areas of Organic Acid disorders.
Discover other OAA families as they share their experiences with rare diseases. Get updates, relate to their stories and find out how you can learn from others in the OAA Community.
Browse videos from our families, watch our webinars on demand and get OAA news.
"The Organic Acidemia Association has been such a wonderful community for our family. When my son was first diagnosed with MMA, we were looking for more information, and the OAA provided us with access to resources and the ability to connect with other families that were in similar situations."
