The Organic Acidemia Association
Board of Directors
The OAA Board of Directors consists of dedicated parents with children who have organic acidemias. Each member of the OAA Board of Directors volunteers their time to empower families and healthcare professionals with knowledge in organic acidemia metabolic disorders. Our OAA Board of Directors is committed to making a difference.
Kathy Stagni, Executive Director
(Propionic Acidemia Parent)
Kathy Stagni is the mother of a 37 year-old daughter diagnosed at 4 days of age with Propionic Acidemia. From that moment, she made it her mission to advocate for her daughter as well as others affected by similar life-threatening disorders.
Menta Pitre, Director
(MMA Cbl C Parent)
Menta Pitre is the mom to Ashtyn, MMA Cobalamin C (age 27). She has been a member of the OAA board for over 20 years. Menta lives with her daughter and husband Jamie in Southern Louisiana.
Cay Welch, Director
(Glutaric Acidemia, Type 1 Parent)
Cay Welch is the mother of a GA-1 child, Michael Metil, who passed away 2009. A cofounder of International Organization of Glutaric Acidemia. Advocated a number of years testifying in various states for expanded newborn screening programs.
Jana Monaco, Advocacy Liaison
(Isovaleric Acidemia Parent)
Jana Monaco is the mother of four children and two of them have a rare inborn error of metabolism called (IVA). Stephen, now 24, suffered severe brain damage at age 3 ½ leaving him with severe disabilities and medical issues due to lack of comprehensive newborn screening at birth.
Karen Dalton, Finance Director
(MMA CBl C Parent)
My name is Karen Dalton. I’m a proud Mom to my son Michael who was diagnosed with MMA Cobalamin C at 6 months of age. At the time, there wasn’t Newborn Screening for MMA, so he was undiagnosed for a long time.
Richard Bazzy, Director
(Isovaleric Acidemia Parent)
Richard Bazzy is a single father of Robert who has Isovaleric Acidemia (IVA) and severe autism. Richard is a Board Member at the Wayne Center which provides services for persons with Intellectual and developmental disabilities.
Allison Wood, Director
(Glutaric Acidemia, Type 1 Parent)
Allison Wood is a parent of a child with Glutaric Acidemia type 1 (GA-1). She is a certified genetic counselor who is passionate about rare disease diagnostics and the family journey through genetic testing. She works for a genetic diagnostics company as a Genetic Services Consultant.
Jenni Jaehnke, Director
(Propionic Acidemia Parent)
Jenni Jaehnke is the parent of a son with Propionic Acidemia. Having had a liver transplant when he was 9 months old, he is now 12 and navigating the pre-teen years with PA. She has two other sons (unaffected) and resides in Minnesota with her children and husband. She is passionate about advocating and finding resources for children and adults with rare diseases and disabilities
Steph Mustin, Director
(Glutaric Acidemia, Type 1 Parent)
Steph Mustin is the parent of a child with Glutaric Acidemia, Type 1 (GA-1). She also has one additional son who is unaffected. Steph lives in Wisconsin with her husband and their two sons. She is passionate about raising awareness, building community, and supporting families navigating life with rare metabolic conditions. Through advocacy, education, and connection, she is committed to improving access to resources and outcomes for individuals living with rare diseases.
Our OAA Board of Directors In Action
The OAA Board of Directors actively participates in initiatives that support research and awareness. Each member brings unique insights that benefit the community served by the OAA Board of Directors.
Our OAA Board Members attending our bi-annual conferences!
Our OAA Board of Directors is always eager to engage with families and share their experiences at these conferences.
