OAA Newsletter: The Cofactor
Research needs families. Together, we make breakthroughs possible.
The OAA newsletter is officially transitioning to a paperless format, creating a streamlined digital space dedicated to advancing organic acidemia research and community connection. By going digital, we are better equipped to help you share your personal journey with clinicians, stay informed on the latest medical breakthroughs and clinical trials, and work together toward achieving our patient registry goals. We invite you to explore the updates below and find new, impactful ways to contribute to the future of organic acidemia care.
Stories In Our Newsletter
Alltrna announces initiation of clinical trial for tRNA therapeutic AP003
Alltrna announces initiation of clinical trial with tRNA therapeutic AP003...
Read MoreReproductive Healthcare Study for Adolescents and Teens with Inherited Metabolic Disorders
Patient and Caregiver Experience with Reproductive Healthcare for Adolescents and...
Read MoreOAA Connects with Metabolic Dietitians at GMDI 2026 Conference
OAA Connects with Metabolic Dietitians at GMDI 2026 Conference The...
Read MoreGabriell, 26 years old, PA
Gabriell, 26 years old, PA Hi all! My name is...
Read MoreOrganic Acidemia Genetic Testing 101
Organic Acidemia Genetic Testing 101 Genetic testing is a powerful...
Read MoreEli, 4.5 years old, GA-1 update
Eli, 4.5 years old, GA-1update In the Fall 2024 Newsletter,...
Read MoreNew Mobile App for OAA Patient Registry

Help advance research, whenever, wherever. The IAMRARE mobile app is available from the Apple Store and Google Play. Download today!
Newsletter Archive
- 2025
- 2024












