OAA Newsletter: The Cofactor
Research needs families. Together, we make breakthroughs possible.
The OAA newsletter is officially transitioning to a paperless format, creating a streamlined digital space dedicated to advancing organic acidemia research and community connection. By going digital, we are better equipped to help you share your personal journey with clinicians, stay informed on the latest medical breakthroughs and clinical trials, and work together toward achieving our patient registry goals. We invite you to explore the updates below and find new, impactful ways to contribute to the future of organic acidemia care.
Stories In Our Newsletter
Beyond the Diagnosis: Meet the Creators Making Their Mark While Living with Organic Acidemias
Beyond the Diagnosis: Meet the Creators Making Their Mark While...
Read MoreA Decade in the Making: Newborn Screening for PDE
A Decade in the Making: Newborn Screening for PDE For...
Read MoreFinley – Pyridoxine Dependent Epilepsy (PDE)
Finley – Pyridoxine Dependent Epilepsy (PDE) Finley was born via...
Read MoreOAA Connects with Metabolic Professionals at SIMD NAMA Training
OAA Connects with Metabolic Professionals at SIMD NAMA Training Kathy...
Read MoreCelebrating 23 Years of OAA Calendars
Celebrating 23 Years of OAA Calendars For the last 15...
Read MoreInforMMA Observational Study Sponsored by Genespire
InforMMA Observational Study Sponsored by Genespire Genespire is sponsoring a...
Read MoreWhy Does It Take So Long: A Field Guide to the Research Pipeline
Why Does It Take So Long: A Field-guide to the...
Read MoreOAA Financial Summary 2025
OAA Financial Summary 2025 Each year we report the financial...
Read MoreNew Mobile App for OAA Patient Registry
Help advance research, whenever, wherever. The IAMRARE mobile app is available from the Apple Store and Google Play. Download today!
