OAA Newsletter: The Cofactor
Research needs families. Together, we make breakthroughs possible.
The OAA newsletter is officially transitioning to a paperless format, creating a streamlined digital space dedicated to advancing organic acidemia research and community connection. By going digital, we are better equipped to help you share your personal journey with clinicians, stay informed on the latest medical breakthroughs and clinical trials, and work together toward achieving our patient registry goals. We invite you to explore the updates below and find new, impactful ways to contribute to the future of organic acidemia care.
Stories In Our Newsletter
Why Does It Take So Long: A Field Guide to the Research Pipeline
Why Does It Take So Long: A Field-guide to the...
Read MoreOAA Financial Summary 2025
OAA Financial Summary 2025 Each year we report the financial...
Read MoreJack, Pyridoxine-Dependent Epilepsy
Jack, Pyridoxine-Dependent Epilepsy Jack was born seemingly healthy but fighting...
Read MoreSannae, Methylmalonic Acidemia (MMA Mut 0)
Sannae, Methylmalonic Acidemia, (MMA Mut 0) “I was only just...
Read MoreNew Research Provides Insight Into How Propionic Acidemia Changes Liver Metabolism
New Research Provides Insight Into How Propionic Acidemia Changes Liver...
Read MoreInsurance coverage can fall short, but help is available.
Insurance coverage can fall short, but help is available. Recap...
Read MoreExploring Barriers to Accessing Medical Foods and Formula
Barriers to Accessing Medical Foods and Formula Research Study Powered...
Read MoreZara, Isovaleric Acidemia
Every Meal Is a Science Experiment: Raising Zara with Isovaleric...
Read MoreNew Mobile App for OAA Patient Registry
Help advance research, whenever, wherever. The IAMRARE mobile app is available from the Apple Store and Google Play. Download today!
