OAA Newsletter: The Cofactor
Research needs families. Together, we make breakthroughs possible.
The OAA newsletter is officially transitioning to a paperless format, creating a streamlined digital space dedicated to advancing organic acidemia research and community connection. By going digital, we are better equipped to help you share your personal journey with clinicians, stay informed on the latest medical breakthroughs and clinical trials, and work together toward achieving our patient registry goals. We invite you to explore the updates below and find new, impactful ways to contribute to the future of organic acidemia care.
Stories In Our Newsletter
Webinar Recap: NIH Research Updates with Dr. Venditti
Webinar Recap: NIH Research Updates with Dr. Venditti https://youtu.be/wSKwmfyrZhE With...
Read MoreResearch Summary: Dr. Charles Venditti’s presentations at ASGCT 2026
Research Summary: Dr. Charles Venditti’s research at ASGCT 2026 Dr....
Read MoreWebinar Recap – Rare Disease Clinical Trial Design: Start with the Patient and Use the Best Science
Webinar Recap – Rare Disease Clinical Trial Design: Start with...
Read MoreGenotype-Phenotype Relationships
Genotype-Phenotype Relationships Traits are the characteristics that define an individual....
Read MoreOur Journey with Propionic Acidemia in Ecuador: Eithan’s Story
Our Journey with Propionic Acidemia in Ecuador: Eithan’s Story English...
Read MoreOAA on the Move: Advancing Organic Acidemia Research This Summer
OAA on the Move: Advancing Organic Acidemia Research This Summer...
Read MoreNew Mobile App for OAA Patient Registry
Help advance research, whenever, wherever. The IAMRARE mobile app is available from the Apple Store and Google Play. Download today!
