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Moderna Voice of the Patient Event - Clip 2 of 4
RARE DISEASE DAY: FEBRUARY 22, 2023
In the second video of the #VoiceOfThePatient series, Honey Stecken, mom to Maren, shares her experience of raising a child with Propionic Acidemia (PA) during COVID-19, and how some parents actually felt safer during the pandemic because others were required to take the same precautions that they had to be mindful of every day.
Moderna's Voice of the Patient Event - Clip 3 of 4
RARE DISEASE DAY: FEBRUARY 22, 2023
In the third video of the #VoiceOfThePatient series, Kathy Stagni, Executive Director of Organic Acidemia Association and mom to Melissa, who lives with Propionic Acidemia, shares her passion to connecting families with rare metabolic disorders.
Moderna Voice of the Patient Event - Clip 4 of 4
RARE DISEASE DAY: FEBRUARY 22, 2023
In the fourth video of the #VoiceOfThePatient series, Kathy Stagni shares how newborn screening is giving the world a better picture of the true impact of rare metabolic disorders like methylmalonic acidemia (MMA) and propionic acidemia, allowing a larger group of families to come together.
AllStripes & OAA: Accelerating research for MMA & PA
ONLINE | December 4, 2022
Interested in learning how you can help advance research for methylmalonic acidemia (MMA) and propionic acidemia (PA). On December 4th, AllStripes hosted a webinar with the Organic Acidemia Association (OAA) to discuss AllStripses' MMA and PA research programs.