Our Kids / Katie Glutaric Acidemia, Type 1 – Age 23 I was diagnosed with Glutaric Aciduria Type 1 when I was 6 years old. The doctors tested me for GA1 because my 15-year-old brother had just got diagnosed. Before
Our Kids / Abbott Formula Update – April 24, 2023 New Updates from Abbott on the availability of metabolic formulas. Full details at metabolicformula.org/supplier-updates.All Abbott metabolic products are now shipping. with the exception of Cyclinex®-2 and Propimex®-2 which are expected
Our Kids / Cameron, Methylmalonic Acidemia, Cbl C, Age 6 Methylmalonic Acidemia caused by Cobalamin C deficiency….Before our daughter Cameron was born we had never even heard about this organic acid disorder. From the onset this term changed our lives.
Our Kids / Nolan, Propionic Acidemia, Age 18 Months Nolan was born in September 2021 after a healthy, low risk, and uneventful pregnancy. Initially all appeared well, although hindsight is 20/20, right? Nolan is my third child and did not
Winter 2023 OAA Newsletter The digital version of the Winter 2023 Newsletter is available now. This issue features family stories, Rare Disease Day coverage and industry partner information. View Now > Click Here For More Newsletters >
Our Kids / NIH Gene Therapy Team Reveals Its Path to FDA Orphan Drug and Rare Pediatric Disease Designations March 29, 2023 Platform Vector Gene Therapy project researchers begin to demystify the regulatory process of developing a gene therapy
Our Kids / Intro to ABLE Accounts for OAA Families – Sunday, April 2, 2023 – 6:30PM Central Join Zoom Meetinghttps://us02web.zoom.us/…/87885752472pwd…Meeting ID: 878 8575 2472Passcode: 447883PRESENTER: TODD MYERSBIO:Todd Myers has been in the financial services industry for 19 years and
Our Kids / Abbott Formula Update – February 7, 2023
Our Kids / Rare Disease Day 2023 OAA Tshirt Fundraiser We are stronger together! OAA represents over 20 different organic acidemias.Our #RareDiseaseDay2023 t-shirt design showcase all our rare disorders! Spread the word – purchase a shirt here https://thecoloredribbon.com/oaastore/OAA receives a
Our Kids / Abbott Formula Update – December 13, 2022
