NORD’s new Organic Acidemia Patient Assistance Programs November 22, 2024 NORD’s new Organic Acidemia Patient Assistance Program, made possible by the Organic Acidemia Association, provides financial support for essential medications, medical formulas and supplements. Apply online: https://bit.ly/4eDchnhOr email: OA@rarediseases.org
Our Kids / Eli, Glutaric Acidemia, Type 1, Age 3 Eli’s condition was diagnosed with the newborn screenings. Grandpa Mike, (me), was there at his birth and I even created a storybook in real time of the event. Eli seemed
Our Kids / Mead Johnson Formula Update – October 2024 Metabolics Supply Patient Association Letter Communication 2nd OCT 2024 FINAL (click here for PDF version)
Our Kids / Mead Johnson Formula Interruption – July 29, 2024 Metabolics Supply Patient Association Letter Communication 29 July 2024 FINAL (click here for PDF version)
Our Kids / Thank you to our 2024 Family Forum Sponsors! Two weeks from today we will be hosting our 2024 Family Forum in Pittsburgh, PA! We are so grateful to our sponsors! We could not have hosted our family
Our Kids / Upcoming Zoom Webinar! Meet our newest physician at the NIH – Dr. Carolina Galarreta Aima Friday, May 3, 2024 – 3PM ET (2PM CT) For Spanish speaking families – please register and a Zoom link will be
