Our Kids / Raechel Methylmalonic Acidemia, Cobalamin C, Age 20 Raechel is a 20 year old sophomore at Christopher Newport University in Virginia. She was born with MMA CblC, before it was part of the newborn screening panel. She was
Fall 2023 OAA Newsletter The digital version of the Fall 2023 Newsletter is available now. Happy Holidays! This issue of the OAA newsletter is packed with exciting developments, information you can use, and moving stories. If you wish to receive
Our Kids / Formula Shortage Survey https://octri.ohsu.edu/redcap/surveys/?s=3KATM4DP4NJ7CXRXFor those affected by the formula supply shortage last year – we have been asked to complete a short survey of your experience. Thanks for your consideration.
Our Kids / Holiday Fundraiser! All funds will go towards scholarships to our 2024 OAA/FOD Conference!https://txrhgiftcards.com/collections/txrh-5-100-no-brd?ref=261OrganicAcidemiaAssoc2023If you purchase in November – the ecards will be sent on December 1 — after December 1st – the ecards will be mailed December
Our Kids / 2024 OAA Fundraising Calendar is ready to purchase! https://www.createphotocalendars.com/Shop/organicacidemiaassociation The 2024 OAA Calendar is now ready to purchase at the link above! We showcase our beautiful children each year in our fundraising calendar. We thank Raymonde, a
My name is Meadow, I am an 18-year-old from Maryland and I was diagnosed with 3MCC (3-Methylcrotonyl CoA Carboxylase Deficiency) when I was just 1 week old.
Leonardo was born on November 27, 2021. He was the second child of ours, and he was seemingly perfect. I gave birth to my first child in April of 2020 in the midst of the pandemic where he was taken
Summer 2023 OAA Newsletter The digital version of the Summer 2023 Newsletter is available now. This issue features family stories, formula and industry partner information. We hope you enjoy this update – if you are interested in sharing your story
April was donate life month. Join Regan Reeder, the moderator of this webinar and OAA parent, as she talks with other OAA Families on discussions about transplants. Click here to watch webinar
We’ll be in touch soon!
