Our Kids / Elizabeth Propionic Acidemia Our adventure started December 17, 2015. Elizabeth was born on her dad’s birthday. Everything seemed normal, first dirty diaper, hearing test, and heal pricks. When she was two days old, she started losing her
Our Kids / Delany & Nathan MMA Cbl B It has taken me a while to get the courage up to tell you about my children. Sometimes I often read all the stories and wonder why we are so lucky.
Our Kids / Connor & Nathan D-2HGA D-2HGA is a very rare neuro-metabolic disorder in which cells produce a toxin that causes progressive damage to the cerebrum, the part of the brain that controls speech, memory, and movement. Since its
Our Kids / Amber MMA, Mut 0 As I approach the five-year anniversary of my transplant, I recall all that I went through in the hospital — people who visited me, workers who went out of their way to get
Our Kids / Vincent MMA Mut 0 Vince’s story began on February 19, 1997, some of you may have read the article on him about seven years ago. For those of you who didn’t, I’ll go ahead and reintroduce him.
Pregnant mothers can count on one certainty: that a clear or “normal” 20-week prenatal anatomy ultrasound produces an involuntary sigh of relief. You find out that everything is, quite literally, in place.
Our Kids / Olivia IVA It was the summer of 1992; I was getting ready to enter my Senior Year in high school. I was working at a Kiwanis Camp for disabled children and adults when I became so sick.
Assalam o alaikum (Arabic for “May peace be upon you”). I am Zareen, mother of Shiekh Muhammad who was born on 1st October 2014 in the country of Oman.
My name is Fernando, and with my wife Lorena are the proud parents of two beautiful boys, Adrian and Gabriel.
My name is Amber and I have MMA- CblA. My mom has written a few articles about me in previous issues when I was younger, but I thought I would share an update.
