Patient and Caregiver Experience with Reproductive Healthcare for Adolescents and Young Adults with Inherited Metabolic Disorders
This research survey is being conducted by Dr. Jessica Gold from Northwell Health.
Researchers are conducting a research study about how young adults with inherited metabolic disorders (IMD) make decisions about contraception and pregnancy. This topic is very important because many young adults with IMD are now reaching adulthood, entering romantic relationships, and starting to think about starting families. The following survey should take about 10-15 minutes to complete.