PA

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Our Kids

Kristy

Our Kids  / Kristy, Propionic Acidemia, Age 60 Happy 2025!I turned 60 years young last December and while known for being the oldest with Propionic Acidemia,; around 6 years ago I went to NIH and was informed that metabolically, I

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Our Kids

Dylan PA

Our Kids  / Dylan Propionic Acidemia (Liver Transplant) Dylan Matthew was born on October 12th, 2013 in Waconia, Minnesota, weighing in at 8 pounds, 2 ounces.  After Dylan was born, the doctors noticed that he had a lower than average

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Liver Transplantation for Propionic and Methylmalonic Acidemias

Liver Transplantation for Propionic and Methylmalonic Acidemias Jerry Vockley, M.D., Ph.D. Professor of Pediatrics, University of Pittsburgh School of MedicineProfessor of Human Genetics, University of Pittsburgh Graduate School of Public HealthChief of Medical Genetics, Children’s Hospital of Pittsburgh Liver transplantation

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Our Kids

Chad

Our Kids  / Chad Propionic Acidemia Wow, ten years have passed since I last wrote an update on my son, Chad, PA.  My last article was in the June 2003 issue. As I try to figure out where to begin,

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Our Kids

Kaitlin

Our Kids  / Kaitlin Propionic Acidemia (Liver Transplant) Our daughter Kaitlin was born in 1999 with Propionic Acidemia. For 13 years she had numerous hospitalizations, fed 100% through a g-tube and used a wheel chair if we needed to be

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Our Kids

Rayan and Yosef

Our Kids  / Rayan and Yosef Propionic Acidemia It was the summer of 2009, our son was turning 2 and I found out I was expecting again. My husband and I were thrilled and our biggest concern at the time

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Our Kids

Kerrie

Our Kids  / Kerrie Propionic Acidemia My name is Kerrie; I live in North Carolina with my husband Mitch. We have been married since December of 09. My family back home includes my mom, dad, brother, 3 sisters, grand parents,

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Our Kids

Cady

Oh, where to begin… I can’t even remember the last time I wrote about Cady. Although, I’ve got a lot to write about! In July of 2008, we went on vacation to Ocean Isle, NC.

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Our Kids

Archie

My name is Fernando, and with my wife Lorena are the proud parents of two beautiful boys, Adrian and Gabriel.

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Our Kids

Kristin

Our Kids  / Kristin Propionic Acidemia Kristin, has it really been almost ten years since you came into our family? Our lives were so different a decade ago. Things were simple, understandable, and fairly predictable. Ten years ago I was

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Recent Post

flyer for webinar on GA1 natural history study on February 18, 2026.
GA-1 Natural History Webinar
Rare Disease Day 2026 – OAA Tshirt Fundraiser
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Elizabeth (age 9) and Morgane (age 7), Propionic Acidemia
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Ryan, 5 months old, Propionic Acidemia
first page of the august 2025 OAA newsletter
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Elijah (19), Tyler (22), MMA Mut 0, Liver/kidney transplant
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Emerald, Glutaric Acidemia, Type 1, Age 2
front page of the OAA Spring 2025 newsletter
Spring 2025 OAA Newsletter (Digital Version Available Now!)
flyer for OAA webinar about introduction to ABLE accounts
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Flyer for 2025 OAA rare disease day t-shirt
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Jonathan, MMA Mut 0, Age 14
Eli, Glutaric Acidemia, Type 1, Age 3
Mead Johnson Formula Update – October 2024
Mead Johnson Formula Interruption – July 29, 2024
Jackson, Methlymalonic Acidemia, Cobalamin C, Age 9
Eithan, Propionic Acidemia, Age 2 – Ecuador
Luisa, Methylmalonic Acidemia Mut 0, Age 4 – Brazil
Thank you Sponsors!!
Upcoming Zoom Webinar – Meet our newest physician at the NIH!
Hope you can attend the 2024 FOD/OAA Family Forum
Ask Me Anything with flok!
Rare Disease Day 2024 – OAA Tshirt Fundraiser
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Update: My Newest Adventure – Michael Clapcich
Karli, Propionic Acidemia, Age 34
Raechel, MMA, Cobalamin C, age 20
Formula Shortage Survey
Holiday Fundraiser – Texas Roadhouse Gift Cards!
2024 OAA Fundraising Calendar Ready to Purchase!
Demo Derby Sibling Honors Brother and others with Organic Acidemias!
Meadow, 3-MCC
Leo – Isovaleric Acidemia, Age 20 months
Summer 2023 OAA Newsletter (Digital Version Available Now!)
Webinar Discussion on Liver/Kidney Transplant with other OAA Families
Join Us for a Dietician Talk-Exclusively for OAA Families
Update on the Rapid Blood Ammonia Testing Instrument
Katie – Glutaric Acidemia, Type 1
Cameron, Methylmalonic Acidemia, Cbl C, Age 6 years
Nolan, Propionic Acidemia, Age 18 months
Winter 2023 OAA Newsletter (Digital Version Available Now!)
Luca, Davide and Simone
Jose
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