PA

Assalam o alaikum (Arabic for “May peace be upon you”). I am Zareen, mother of Shiekh Muhammad who was born on 1st October 2014 in the country of Oman.

Our Kids  / Martin Propionic Acidemia Our son, Martin, was born on 05/25/2020, well and healthy, we were discharged on 05/27, and we observed on 05/29 loss of appetite and altered breathing, on 05/30 following with these symptoms and also

Nika’s story is not one of tribulation but one of triumph. She arrived 2 weeks early, on a Thursday morning, weighing 5.8lbs. There were no complications except she had a low glucose level that was quickly remedied.

Our Kids  / Update from Bryan Priopionic Acidemia For those of you who don’t know me, my name is Bryan and I am 33 with Propionic Acidemia, Cardiomyopathy, stage 3 Kidney failure and Lyme disease. In my first article I

Our Kids  / Bryan Priopionic Acidemia Hello for those of you who do not know me, my name is Bryan. I am thirty years old and I have Propionic Acidemia. In the beginning doctors did not think anything was wrong

Our Kids  / Lucy Propionic Acidemia My daughter Lucy is 21 and has Propionic Acidemia. Lucy had a metabolic crisis at birth and the neonatologist immediately suspected an organic acidemia. It took about a week to confirm a diagnosis but

Our Kids  / Annabelle Propionic Acidemia Annabelle Grace was born September 20, 2016 and like many children with Propionic Acidemia (PA) she went into metabolic crisis a couple of days after birth.  After talking to our genetics team in December

Our Kids  / Reece Propionic Acidemia Reece suffered his 1st metabolic crisis at 2 days old & was given the official diagnosis of Propionic Acidemia at 5 days old.  Thankfully for us we were in the right place at the

Our Kids  / Maya & Christian Propionic Acidemia People always say that you never know true love until you become a mother.  I think those people are absolutely correct.  I will never forget the moment when my daughter was placed

Our Kids  / Maren Propionic Acidemia Maren Winter was born on February 13, 2012.  She weighed 8 pounds 6.5 ounces and was 21 inches long.  She had a bit of peach fuzz for hair and was chubby as chubby gets!