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Intro to ABLE Accounts for OAA Families

Our Kids  / Intro to ABLE Accounts for OAA Families – Sunday, April 2, 2023 – 6:30PM Central Join Zoom Meetinghttps://us02web.zoom.us/…/87885752472pwd…Meeting ID: 878 8575 2472Passcode: 447883PRESENTER: TODD MYERSBIO:Todd Myers has been in the financial services industry for 19 years and

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Henry, MMA, Cobalamin C, Age 2

Our Kids  / Henry, MMA, Cobalamin C, Age 2 Henry was born in 2020 in Missouri. I had a normal pregnancy and delivery. He was born at 39 weeks, but only weighed 5lbs 13oz. This was my first clue that

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Mason, Cobalamin C Deficiency, Age 7

Our Kids  / Mason Cobalamin C Deficiency, Age 7 In the fall of 2014, we were living the “classic” American dream.  We had a 2-year-old daughter, a yellow Labrador and were about to have our son.  Mason was born December

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Taryn

Our Kids  / Taryn MMA Cbl A, Age 22 Hi my name is Taryn and on January 30, 2000, I was born at 3:15pm at Jefferson Hospital in Philadelphia, Pennsylvania and weighed 7 pounds 1 ounce. When I was born,

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Recent Post

Rare Disease Day 2026 – OAA Tshirt Fundraiser
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front page of the OAA Spring 2025 newsletter
Spring 2025 OAA Newsletter (Digital Version Available Now!)
flyer for OAA webinar about introduction to ABLE accounts
Intro to ABLE Accounts for OAA Families
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Mead Johnson Formula Update – October 2024
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Eithan, Propionic Acidemia, Age 2 – Ecuador
Luisa, Methylmalonic Acidemia Mut 0, Age 4 – Brazil
Thank you Sponsors!!
Upcoming Zoom Webinar – Meet our newest physician at the NIH!
Hope you can attend the 2024 FOD/OAA Family Forum
Ask Me Anything with flok!
Rare Disease Day 2024 – OAA Tshirt Fundraiser
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Update: My Newest Adventure – Michael Clapcich
Karli, Propionic Acidemia, Age 34
Raechel, MMA, Cobalamin C, age 20
Formula Shortage Survey
Holiday Fundraiser – Texas Roadhouse Gift Cards!
2024 OAA Fundraising Calendar Ready to Purchase!
Demo Derby Sibling Honors Brother and others with Organic Acidemias!
Meadow, 3-MCC
Leo – Isovaleric Acidemia, Age 20 months
Summer 2023 OAA Newsletter (Digital Version Available Now!)
Webinar Discussion on Liver/Kidney Transplant with other OAA Families
Join Us for a Dietician Talk-Exclusively for OAA Families
Update on the Rapid Blood Ammonia Testing Instrument
Katie – Glutaric Acidemia, Type 1
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Nolan, Propionic Acidemia, Age 18 months
Winter 2023 OAA Newsletter (Digital Version Available Now!)
Luca, Davide and Simone
Jose
Gabriel
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