Nika’s story is not one of tribulation but one of triumph. She arrived 2 weeks early, on a Thursday morning, weighing 5.8lbs. There were no complications except she had a low glucose level that was quickly remedied.
Our Kids / Charisma MMA Mut 0, Age 30 Hello everyone, so a lot has happened over the last few years, but I wanted to share an update with you all. Today is September 8, 2024, I am turning 30
Our Kids / Update from Bryan Priopionic Acidemia For those of you who don’t know me, my name is Bryan and I am 33 with Propionic Acidemia, Cardiomyopathy, stage 3 Kidney failure and Lyme disease. In my first article I
Our Kids / Bryan Priopionic Acidemia Hello for those of you who do not know me, my name is Bryan. I am thirty years old and I have Propionic Acidemia. In the beginning doctors did not think anything was wrong
Casey was born on a hot July day in 2008. His mom’s third child, he was delivered a week early via C-section, weighing 8.5 pounds.
Our Kids / Lucy Propionic Acidemia My daughter Lucy is 21 and has Propionic Acidemia. Lucy had a metabolic crisis at birth and the neonatologist immediately suspected an organic acidemia. It took about a week to confirm a diagnosis but
Our Kids / Lydia 3-MCC After an easy birth our little Lydia was born on a Monday in late September. The doctors said she was healthy, and we started trying to breastfeed right away. She just wasn’t interested. The nurses
Our Kids / Mia & Cadi Isovaleric Acidemia As I sit here writing this article, a wave of emotions overcome me. It is only natural as I look through photos of troubled times when my children suffered a metabolic crisis
Our Kids / Mason MMA My son Mason has MMA mut 0. He is now 22 years old and is doing so well that I wanted to write another little story for this fantastic newsletter. He did appear some years
Our Kids / Nikki Glutaric Acidemia, Type 1 Hi, my name is Nikki. I am 21 years old and live in Bethlehem, Pennsylvania. Most of you probably have heard my story, but if you haven’t, I will give a brief
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