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Update from Bryan

Priopionic Acidemia

For those of you who don’t know me, my name is Bryan and I am 33 with Propionic Acidemia, Cardiomyopathy, stage 3 Kidney failure and Lyme disease. In my first article I talked about how I pride myself on my independence. I live on my own without much help. I pay my own bills, make my own phone calls and make it to most of my appointments. These efforts recently had to be doubled to my parents recently getting divorced.

They are under enough stress so I had to take action. I now take the LANtaVan to work on most days.  Although I work at a food store, going shopping after has always been hard for me. That’s why I started online shopping. It’s a bit pricey, but you have to do what you have to. If I need to get out or want to do something not work related I’ll use Uber since the LANtaVan is only for work and appointments.

Last July 4th I suffered a Metabolic Acidosis but it was my own fault. Had a little too much fun. Lucky for me I made full recovery. I still exercise daily. Yoga and walking are my favorites but I also run and do light lifting. Mediation is also something I’m huge into. It helps me keep my mind at bay. Overall my I believe my health is better than ever. I fully intend to live life to its fullest.

If you would like to reach out to me:

E-mail – Bryank1186@hotmail.com

Blog – https://www.whenlifegivesyouachance.com/

From the Spring 2020 OAA Newsletter

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