The COMPASS Study, sponsored
by Moderna and supported by PicnicHealth
About the Partnership
We’re happy to share this new research opportunity with you. The COMPASS Study, sponsored by Moderna and supported by PicnicHealth, is designed to better understand what life is like for people living with methylmalonic acidemia (MMA) due to mutase deficiency (MUT) and propionic acidemia (PA).
About the COMPASS Study
The COMPASS Study, sponsored by Moderna, aims to better understand the real-world experience of individuals living with MMA and PA—beyond the clinical trial setting. This is an observational study, meaning no new treatments, visits, or changes to care are required.
With your permission, PicnicHealth will securely collect and organize medical records for you or your loved one. Only de-identified data—without names or personal details—is shared with researchers.
By looking at health information over time, researchers can better understand how MMA and PA progress, including disease patterns, quality of life, healthcare use, and outcomes such as metabolic events and the impact of transplants.
This research may help improve care and inform future treatments. It only takes a few minutes to sign up, and PicnicHealth handles the rest.
As a thank-you for your time, you’ll receive an e-gift card once eligibility is confirmed. You’ll also get a free PicnicHealth account to view and manage medical records in one place—making it easier to track care and share information with your care team.
You are eligible for participating in the COMPASS Study if you or your loved one:
- Have been diagnosed with MMA or PA
- Reside and receive care in the U.S.
About PicnicHealth
PicnicHealth is a leading health technology company simplifying healthcare for everyone. Through a combination of clinical expertise and technology, PicnicHealth provides patients with their organized medical records to prepare for doctor visits and advocate for themselves. Patients can also more easily participate in observational research to advance medicine and enrich lives.
PicnicHealth follows HIPAA-compliant practices and uses advanced end-to-end encryption and security measures, the same technology banks use to keep information secure. Once collected, your or your loved one’s records live in a private portal and are only shared with your permission.
As a participant, you’ll not only help researchers answer important questions, but you’ll also get access to all your medical records through a secure, easy-to-use platform. You can track health trends over time and even send your consolidated records to a healthcare provider in one click.
If you join the COMPASS Study, you’ll get:
- Free access to a PicnicHealth account for the duration of the study.
- All your medical records, fully organized into a digital timeline that you can view anytime.
- Tools to track health trends over time.
- Secure sharing options for healthcare providers.
