MMA

Team Tyjah

Our Kids  / Jonathan MMA, Mut 0, Age 14 Jonathan was diagnosed with methylmalonic acidemia (MMA) at age 2 following a traumatic brain injury that led to the discovery of his condition. As a result of his diagnosis, he lost

Our Kids  / Elaina Rose MMA Elaina Rose was born April 23rd, 2017 weighing 6lbs 12oz and had a head full of beautiful brown hair and she was absolutely perfect. Everything was going great; we got discharged to go home

Our Kids  / Johnny MMA, Mut 0 – Our Trip to the NIH Our NIH Visit, by John and Lourdes (Johnny, 6 Yrs. Old, MMA mut0) This is an account of the week we spent at NIH, participating in the clinical

Our Kids  / Amber MMA, Mut 0 As I approach the five-year anniversary of my transplant, I recall all that I went through in the hospital — people who visited me, workers who went out of their way to get

Our Kids  / Vincent MMA Mut 0 Vince’s story began on February 19, 1997, some of you may have read the article on him about seven years ago. For those of you who didn’t, I’ll go ahead and reintroduce him.

Riley was born on June 3Rd, 2010. Shortly after birth she began to show signs of complications. On the third day of her life we rushed her back to the ER for labored breathing, dehydration and weak muscles. It seemed

Our Kids  / Charisma MMA Mut 0, Age 30 Hello everyone, so a lot has happened over the last few years, but I wanted to share an update with you all. Today is September 8, 2024, I am turning 30

Our Kids  / Mason MMA My son Mason has MMA mut 0. He is now 22 years old and is doing so well that I wanted to write another little story for this fantastic newsletter. He did appear some years