GA1

Our Kids

Josh

Our Kids  / Josh Glutaric Acidemia, Type 1 Hi.   My name is Josh, I am 23 and I have GA1 also known as Glutaric Acidemia Type 1. I have had this from age 2 it is cause from to much

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Our Kids

Nikki

Our Kids  / Nikki Glutaric Acidemia, Type 1 Hi, my name is Nikki. I am 21 years old and live in Bethlehem, Pennsylvania. Most of you probably have heard my story, but if you haven’t, I will give a brief

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Our Kids

Carter and Harper

Hi there, my name is Amber, and I am the proud mom of three beautiful children, Carter, 10 (GA1), Callum, 6 (unaffected) and Harper is 3 (GA1). The last time I wrote for OAA, Carter was 2 and we had

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Our Kids

Nolan and Ethan

Our Kids  / ​Nolan and Ethan Glutaric Acidemia, Type 1 The Story of Nolan and Ethan, written by their mothers, Stephanie and Mandy Nolan- On Monday, November 7, 2011 my 10lbs. 3ozs. boy finally arrived in Menomonee Falls, Wisconsin.  Nolan David.

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Our Kids

Liam

Our Kids  / Liam Glutaric Acidemia, Type 1 Liam was born on April 13, 2011.  He was 10    days over and I had to scream and shout to be induced for 5 days as I knew some thing was wrong.

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ALL

Charlene

For those of you who do not know us, my name is Debbie and I am the proud Mom to Charlene, 17, GA1. Char was diagnosed at 8.5 months old after a metabolic stroke.

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Our Kids

Tre

Our Kids  / Tre Glutaric Acidemia, Type 1 My son Tre was born in Carthage, New York on November 3, 1999.  He wasn’t very active before birth but around 10 pm every night he would roll in my tummy and

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Our Kids

Nathan

Our Kids  / Nathan Glutaric Acidemia, Type 1 My name is Stephanie. My husband Bruce and I are the parents of Nathan our 3 year old who has Glutaric Acidemia Type 1. Nathan was born on March 6, 2006. When

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Our Kids

Cheyenne

Cheyenne was born on August 31, 2005. She is now 3 ½ years old and growing every day! Her story is like so many others with Glutaric Acidemia Type I that I have read through OAA.

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Our Kids

Zachary

Born in California in April 2003, Zachary has Glutaric Acidemia Type 1 (GA1), which was diagnosed after a neurologic crisis in infancy. He has severe brain damage typical of this disorder, meaning his motor skills are devastated and he has

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Recent Post

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