OAA is hosting a virtual town hall on May 31, 2026 at 6pm Central Time. Come to here about updates on our programming, exciting things to look forward to, and give feedback on what is important to you. Bring any
Eli, 4.5 years old, GA-1update In the Fall 2024 Newsletter, Mike and Sandra Wagner shared their story about their son, Eli. Diagnosed with GA1 through newborn screening, Eli suffered a metabolic crisis at just 5 months old. By the time
Emerald, GA-1 Update Emerald is a vibrant, determined three-year-old who happens to live with Glutaric acidemia type 1 (GA1), a rare metabolic disorder that requires careful, lifelong management. While her diagnosis shapes the structure of our days, it does not
GA-1 Natural History Webinar February 25, 2026 – 12PM MDTZoom link: https://ucdenver.zoom.us/j/98886758263 The Coughlin Lab, in partnership with a pharmaceutical company, is conducting a natural history study of Glutaric Acidemia Type 1 (GA1) to improve our understanding of disease progression,
Our Kids / Eli, Glutaric Acidemia, Type 1, Age 3 Eli’s condition was diagnosed with the newborn screenings. Grandpa Mike, (me), was there at his birth and I even created a storybook in real time of the event. Eli seemed
Our Kids / Katie Glutaric Acidemia, Type 1 – Age 23 I was diagnosed with Glutaric Aciduria Type 1 when I was 6 years old. The doctors tested me for GA1 because my 15-year-old brother had just got diagnosed. Before
Our Kids / Destiny, Glutaric Acidemia, Type 1, 20 years old Destiny is a bright and cheerful 20-year-old. She is our middle child of three with an older brother and younger sister who both still antagonize her like any normal
Our Kids / Michael Glutaric Acidemia, Type 1 My name is Michael and I have Glutaric Acidemia type 1. I am in a power wheelchair which I drive with switches near my head. I also have a communication device which
Our Kids / Josh Glutaric Acidemia, Type 1 Hi. My name is Josh, I am 23 and I have GA1 also known as Glutaric Acidemia Type 1. I have had this from age 2 it is cause from to much
