Josh

Glutaric Acidemia, Type 1

Hi.   My name is Josh, I am 23 and I have GA1 also known as Glutaric Acidemia Type 1. I have had this from age 2 it is cause from to much protein. I am a member of OAA so I can get people to come to my site and I can help them out by emailing and chatting with them. I like to help people with disorders and things. I have met people with the OAA and I helped them get a bill passed for newborn testing in West Virginia.  I tell about that on my site.  I would really like to tell more about me.  I like to talk on the phone, chat, work and go for walks.  Now more about GA1 and things.  I use to go to Pittsburgh to the Children’s Hospital.  I use to go there for doctor appointments.  I don’t how much, but it was a lot.  I haven’t been there for years now.  So I have been doing good.  I am off my low protein diet.  I was on it for years, but the doctors said I could be taken off it.  I graduated school on the honor roll in 2002.  I went to West Virginia Division of Rehabilitation Center in 2004 and they kicked me out in 2005 or something like that.  I forget what year, but why they kicked me out is because they were scared I would fall and get hurt and get a law suit.  I still don’t think that was right.  But you can read more on my site about it. That’s the end of my story. 

Thanks your GA1 friend Josh

Josh
New Martinsville WV