OAA Welcomes Two New Board Members

The Organic Acidemia Association is welcoming two new board members, Jenni Jaehnke and Steph Mustin.

Jenni Jaehnke is the parent of a son with Propionic Acidemia.  Having had a liver transplant when he was 9 months old, he is now 12 and navigating the pre-teen years with PA.  She has two other sons (unaffected) and resides in Minnesota with her children and husband.  She is passionate about advocating and finding resources for children and adults with rare diseases and disabilities.

Steph Mustin is the parent of a child with Glutaric Acidemia, Type 1 (GA-1). She also has one additional son who is unaffected. Steph lives in Wisconsin with her husband and their two sons. She is passionate about raising awareness, building community, and supporting families navigating life with rare metabolic conditions. Through advocacy, education, and connection, she is committed to improving access to resources and outcomes for individuals living with rare diseases.