Upgraded Organic Acidemia Natural History Registry! The Organic Acidemia Natural History Registry has migrated to a new platform! Current participants will be sent an email to activate their account on the new platform. Not a participant yet? Sign up now
NIH awards more than $15 million to fund two rare diseases consortia Baylor College of Medicine has received new funding from the National Institutes of Health for two consortia in the Rare Diseases Clinical Research Network: $7.4 million over five years
Summer 2025 OAA Newsletter The digital version of the Summer 2025 Newsletter is available now. Our new Summer 2025 OAA Newsletter is here! Explore inspiring family journeys, updates on the OAA registry, new medical advisor, and more. OAA-Summer-2025-Final If you wish
Spring 2025 OAA Newsletter The digital version of the Spring 2025 Newsletter is available now. This issue of the OAA newsletter is packed with exciting developments, information you can use, and moving stories. View Now > If you wish to
Our Kids / Intro to ABLE Accounts for OAA Families – Sunday, March 9, 2025 – 7:00PM Central Join Zoom Meetinghttps://us02web.zoom.us/j/87120309863…Meeting ID: 871 2030 9863Passcode: 123456 PRESENTER: TODD MYERSTodd Myers has been in the financial services industry for 20 years and
Our Kids / Rare Disease Day 2025 OAA Tshirt Fundraiser We are stronger together! OAA represents over 20 different organic acidemias.Our #RareDiseaseDay2025 t-shirt design showcase all our rare disorders all over the globe! Spread the word – purchase a shirt here:
Our Kids / 2025 OAA Fundraising Calendar is ready to purchase! https://www.createphotocalendars.com/Shop/organicacidemiaassociation The 2025 OAA Fundraising Calendar is now ready to purchase at the link above! We showcase our beautiful children each year in our fundraising calendar. We thank Raymonde,
NORD’s new Organic Acidemia Patient Assistance Programs November 22, 2024 NORD’s new Organic Acidemia Patient Assistance Program, made possible by the Organic Acidemia Association, provides financial support for essential medications, medical formulas and supplements. Apply online: https://bit.ly/4eDchnhOr email: OA@rarediseases.org
Our Kids / Eli, Glutaric Acidemia, Type 1, Age 3 Eli’s condition was diagnosed with the newborn screenings. Grandpa Mike, (me), was there at his birth and I even created a storybook in real time of the event. Eli seemed
