Our Kids / Stephanie & Jack D2HGA I’ve been meaning to write Stephanie’s story (and now Jack’s story) for a long time. It just seemed like such a monumental task. The recent death of a very special baby boy with
Our Kids / Sherry D2HGA My daughter Sherry was born with D2HGA. It was still a very novel disease at that time. I think there may be about 60 D2HGA’s globally? At birth, she was tiny. Even at 36, I was
Our Kids / Connor & Nathan D-2HGA D-2HGA is a very rare neuro-metabolic disorder in which cells produce a toxin that causes progressive damage to the cerebrum, the part of the brain that controls speech, memory, and movement. Since its
Our Kids / Meredith L2HGA Meredith Elyse – DOB 12-25-1989. Merry Christmas! Meredith is our fourth child. She was preceded by three brothers, who are now 23, 21, and 18. The pregnancy was uneventful and other than being born on
We’ll be in touch soon!
