Our Kids / Olivia IVA It was the summer of 1992; I was getting ready to enter my Senior Year in high school. I was working at a Kiwanis Camp for disabled children and adults when I became so sick.
Assalam o alaikum (Arabic for “May peace be upon you”). I am Zareen, mother of Shiekh Muhammad who was born on 1st October 2014 in the country of Oman.
My name is Fernando, and with my wife Lorena are the proud parents of two beautiful boys, Adrian and Gabriel.
My name is Amber and I have MMA- CblA. My mom has written a few articles about me in previous issues when I was younger, but I thought I would share an update.
Our Kids / Andy Cobalamin C Andy turned 37 in January 2022! Unbelievable that we have been OA parents for that long…and really glad and grateful for the love and support of our friends, medical team and family to get
Riley was born on June 3Rd, 2010. Shortly after birth she began to show signs of complications. On the third day of her life we rushed her back to the ER for labored breathing, dehydration and weak muscles. It seemed
Our son, Siem, has MMA-CBL B. He was born on 27-07-2015 with a normal delivery. Until then, everything went perfect. Siem was tall (54 cm) and weight 4080 grams.
Our Kids / Marc, Age 36 MMA, Cbl B, Non B12 Responsive Hi, I’m Marc from Belgium, I have MMA Cbl B, non-vitamin B12 responsive. I’m 36 years old and for a person with my condition, I am in good
Our Kids / Heidi 3-MCC October 13, 2005…The day my first beautiful daughter Michaela came into the world was one of the most blessed days of my life. I loved to stare at her big brown eyes, full head of
Our Kids / Martin Propionic Acidemia Our son, Martin, was born on 05/25/2020, well and healthy, we were discharged on 05/27, and we observed on 05/29 loss of appetite and altered breathing, on 05/30 following with these symptoms and also
We’ll be in touch soon!
