Winter 2023 OAA Newsletter The digital version of the Winter 2023 Newsletter is available now. This issue features family stories, Rare Disease Day coverage and industry partner information. View Now > Click Here For More Newsletters >
Our Kids / NIH Gene Therapy Team Reveals Its Path to FDA Orphan Drug and Rare Pediatric Disease Designations March 29, 2023 Platform Vector Gene Therapy project researchers begin to demystify the regulatory process of developing a gene therapy
Our Kids / Intro to ABLE Accounts for OAA Families – Sunday, April 2, 2023 – 6:30PM Central Join Zoom Meetinghttps://us02web.zoom.us/…/87885752472pwd…Meeting ID: 878 8575 2472Passcode: 447883PRESENTER: TODD MYERSBIO:Todd Myers has been in the financial services industry for 19 years and
Our Kids / Abbott Formula Update – February 7, 2023
Our Kids / Rare Disease Day 2023 OAA Tshirt Fundraiser We are stronger together! OAA represents over 20 different organic acidemias.Our #RareDiseaseDay2023 t-shirt design showcase all our rare disorders! Spread the word – purchase a shirt here https://thecoloredribbon.com/oaastore/OAA receives a
Our Kids / Abbott Formula Update – December 13, 2022
Our Kids / 2023 OAA Fundraising Calendar is ready to purchase! https://www.createphotocalendars.com/Shop/organicacidemiaassociation The 20th OAA Calendar is now ready to purchase at the link above! We showcase our beautiful children each year in our fundraising calendar. We thank Raymonde, a
Our Kids / Abbott Formula Update – November 1, 2022 Abbott has released an updated schedule for release of its newly manufactured metabolic formulas: Details at https://metabolicformula.org/category/supplier-updates/For any product not yet released the Urgent Needs Program is still in effect.
Our Kids / Henry, MMA, Cobalamin C, Age 2 Henry was born in 2020 in Missouri. I had a normal pregnancy and delivery. He was born at 39 weeks, but only weighed 5lbs 13oz. This was my first clue that
Our Kids / Destiny, Glutaric Acidemia, Type 1, 20 years old Destiny is a bright and cheerful 20-year-old. She is our middle child of three with an older brother and younger sister who both still antagonize her like any normal
