Our Kids / Formula Shortage Survey https://octri.ohsu.edu/redcap/surveys/?s=3KATM4DP4NJ7CXRXFor those affected by the formula supply shortage last year – we have been asked to complete a short survey of your experience. Thanks for your consideration.
Our Kids / Holiday Fundraiser! All funds will go towards scholarships to our 2024 OAA/FOD Conference!https://txrhgiftcards.com/collections/txrh-5-100-no-brd?ref=261OrganicAcidemiaAssoc2023If you purchase in November – the ecards will be sent on December 1 — after December 1st – the ecards will be mailed December
Our Kids / 2024 OAA Fundraising Calendar is ready to purchase! https://www.createphotocalendars.com/Shop/organicacidemiaassociation The 2024 OAA Calendar is now ready to purchase at the link above! We showcase our beautiful children each year in our fundraising calendar. We thank Raymonde, a
Summer 2023 OAA Newsletter The digital version of the Summer 2023 Newsletter is available now. This issue features family stories, formula and industry partner information. We hope you enjoy this update – if you are interested in sharing your story
April was donate life month. Join Regan Reeder, the moderator of this webinar and OAA parent, as she talks with other OAA Families on discussions about transplants. Click here to watch webinar
Exclusively for our OAA families — Hope you can join us for our OAA Dietitian Talk Feel free to submit questions ahead of this call (email mkstagni@gmail.com) – or ask during the call. Elaina Jurecki, MS, RD Private Consultant For Treatments
Update on The Rapid Blood Ammonia Testing Instrument Thomas Veltman, Ph.D.President and CTOAza Technology, Inc.tv@azatechnology.com Aza Technology has made significant progress towards the commercialization of our point-of-care Ammonia Monitoring Device (AMD). In our previous update, we informed readers that we
Our Kids / Katie Glutaric Acidemia, Type 1 – Age 23 I was diagnosed with Glutaric Aciduria Type 1 when I was 6 years old. The doctors tested me for GA1 because my 15-year-old brother had just got diagnosed. Before
Our Kids / Abbott Formula Update – April 24, 2023 New Updates from Abbott on the availability of metabolic formulas. Full details at metabolicformula.org/supplier-updates.All Abbott metabolic products are now shipping. with the exception of Cyclinex®-2 and Propimex®-2 which are expected
Our Kids / Cameron, Methylmalonic Acidemia, Cbl C, Age 6 Methylmalonic Acidemia caused by Cobalamin C deficiency….Before our daughter Cameron was born we had never even heard about this organic acid disorder. From the onset this term changed our lives.
