Research needs families. Together, we make breakthroughs possible.
The OAA newsletter is officially transitioning to a paperless format, creating a streamlined digital space dedicated to advancing organic acidemia research and community connection. By going digital, we are better equipped to help you share your personal journey with clinicians, stay informed on the latest medical breakthroughs and clinical trials, and work together toward achieving our patient registry goals. We invite you to explore the updates below and find new, impactful ways to contribute to the future of organic acidemia care.
Stories In Our Newsletter
Organic Acidemia Genetic Testing 101
Organic Acidemia Genetic Testing 101 Genetic testing is a powerful...
Read MoreEli, 4.5 years old, GA-1 update
Eli, 4.5 years old, GA-1update In the Fall 2024 Newsletter,...
Read MoreEmerald, GA-1 Update
Emerald, GA-1 Update Emerald is a vibrant, determined three-year-old who...
Read MoreRare Disease Day 2026
Rare Disease Day 2026 Saturday, February 28, 2026 was Rare...
Read MoreUpdate from Moderna on mRNA Clinical Trial for PA
Moderna mRNA clinical trial for PA update An update from...
Read MoreOAA Welcomes Two New Board Members
OAA Welcomes Two New Board Members The Organic Acidemia Association...
Read MoreNew Mobile App for OAA Patient Registry
Help advance research, whenever, wherever. The IAMRARE mobile app is available from the Apple Store and Google Play. Download today!
