MMA Cbl B

Our Kids

​Delany and Nathan

Our Kids  / Delany & Nathan MMA Cbl B It has taken me a while to get the courage up to tell you about my children.  Sometimes I often read all the stories and wonder why we are so lucky. 

Read More »
Siem
Our Kids

Siem

Our son, Siem, has MMA-CBL B. He was born on 27-07-2015 with a normal delivery. Until then, everything went perfect. Siem was tall (54 cm) and weight 4080 grams.

Read More »
Our Kids

Marc, Age 36

Our Kids  / Marc, Age 36 MMA, Cbl B, Non B12 Responsive Hi, I’m Marc from Belgium, I have MMA Cbl B, non-vitamin B12 responsive.  I’m 36 years old and for a person with my condition, I am in good

Read More »
Victoria
Our Kids

Victoria

Our Kids  / Victoria ​MMA Cbl B Victoria was born on November 7th of 2012. We live in Tacoma, Washington; it’s about 40 minutes south of Seattle. Brandon and I have been married for almost 8 years and Victoria is

Read More »

Recent Post

flyer for webinar on GA1 natural history study on February 18, 2026.
GA-1 Natural History Webinar
Rare Disease Day 2026 – OAA Tshirt Fundraiser
Organic Acidemia Natural History Registry has migrated to a new platform!
NIH awards more than $15 million to fund two rare diseases consortia
picture of young noy smiling and holding handmade Rare bear
Abram & Asa, MMA Cbl B
two young girls sitting on a merry-go-round
Elizabeth (age 9) and Morgane (age 7), Propionic Acidemia
blonde haired baby with yellow onsie crawling on a blanket
Ryan, 5 months old, Propionic Acidemia
first page of the august 2025 OAA newsletter
Summer 2025 OAA Newsletter (Digital Version Available Now!)
photo of orange race car with the number 760 on the side driving on race track
Elijah (19), Tyler (22), MMA Mut 0, Liver/kidney transplant
toddler sitting on a knitted blanket next to some pink sunglasses
Emerald, Glutaric Acidemia, Type 1, Age 2
front page of the OAA Spring 2025 newsletter
Spring 2025 OAA Newsletter (Digital Version Available Now!)
flyer for OAA webinar about introduction to ABLE accounts
Intro to ABLE Accounts for OAA Families
Flyer for 2025 OAA rare disease day t-shirt
Rare Disease Day 2025 – OAA Tshirt Fundraiser
2025 OAA Fundraising Calendar Ready to Purchase!
first page of the OAA Patient Assistance program flyer
NORD’s new Organic Acidemia Patient Assistance Program
Nutricia Changes Production of GlutarAde
Jonathan, MMA Mut 0, Age 14
Eli, Glutaric Acidemia, Type 1, Age 3
Mead Johnson Formula Update – October 2024
Mead Johnson Formula Interruption – July 29, 2024
Jackson, Methlymalonic Acidemia, Cobalamin C, Age 9
Eithan, Propionic Acidemia, Age 2 – Ecuador
Luisa, Methylmalonic Acidemia Mut 0, Age 4 – Brazil
Thank you Sponsors!!
Upcoming Zoom Webinar – Meet our newest physician at the NIH!
Hope you can attend the 2024 FOD/OAA Family Forum
Ask Me Anything with flok!
Rare Disease Day 2024 – OAA Tshirt Fundraiser
3D avatar of woman with multicolored jumpsuit and chunky black boots
Update: My Newest Adventure – Michael Clapcich
Karli, Propionic Acidemia, Age 34
Raechel, MMA, Cobalamin C, age 20
Formula Shortage Survey
Holiday Fundraiser – Texas Roadhouse Gift Cards!
2024 OAA Fundraising Calendar Ready to Purchase!
Demo Derby Sibling Honors Brother and others with Organic Acidemias!
Meadow, 3-MCC
Leo – Isovaleric Acidemia, Age 20 months
Summer 2023 OAA Newsletter (Digital Version Available Now!)
Webinar Discussion on Liver/Kidney Transplant with other OAA Families
Join Us for a Dietician Talk-Exclusively for OAA Families
Update on the Rapid Blood Ammonia Testing Instrument
Katie – Glutaric Acidemia, Type 1
Cameron, Methylmalonic Acidemia, Cbl C, Age 6 years
Nolan, Propionic Acidemia, Age 18 months
Winter 2023 OAA Newsletter (Digital Version Available Now!)
Luca, Davide and Simone
Jose
Gabriel
Select Language

Subscribe to our Blog / Newsletter