Rare Disease Day 2026 – OAA Tshirt Fundraiser
January 26, 2026
Our Kids / Jonathan MMA, Mut 0, Age 14 Jonathan was diagnosed with methylmalonic acidemia (MMA) at age 2 following a traumatic brain injury that led to the discovery of his condition. As a result of his diagnosis, he lost
Our Kids / Eli, Glutaric Acidemia, Type 1, Age 3 Eli’s condition was diagnosed with the newborn screenings. Grandpa Mike, (me), was there at his birth and I even created a storybook in real time of the event. Eli seemed
