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Holiday Fundraiser – Texas Roadhouse Gift Cards!

Our Kids / Holiday Fundraiser! All funds will go towards scholarships to our 2024 OAA/FOD Conference!https://txrhgiftcards.com/collections/txrh-5-100-no-brd?ref=261OrganicAcidemiaAssoc2023If you purchase in November – the ecards will be sent on December 1 — after December 1st – the ecards will be mailed December

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2024 OAA Fundraising Calendar Ready to Purchase!

Our Kids / 2024 OAA Fundraising Calendar is ready to purchase! https://www.createphotocalendars.com/Shop/organicacidemiaassociation The 2024 OAA Calendar is now ready to purchase at the link above! We showcase our beautiful children each year in our fundraising calendar. We thank Raymonde, a

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Summer 2023 OAA Newsletter (Digital Version Available Now!)

Summer 2023 OAA Newsletter The digital version of the Summer 2023 Newsletter is available now. This issue features family stories, formula and industry partner information. We hope you enjoy this update – if you are interested in sharing your story

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Webinar Discussion on Liver/Kidney Transplant with other OAA Families

April was donate life month. Join Regan Reeder, the moderator of this webinar and OAA parent, as she talks with other OAA Families on discussions about transplants. Click here to watch webinar

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Join Us for a Dietician Talk-Exclusively for OAA Families

Exclusively for our OAA families — Hope you can join us for our OAA Dietitian Talk Feel free to submit questions ahead of this call (email mkstagni@gmail.com) – or ask during the call. Elaina Jurecki, MS, RD Private Consultant For Treatments

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Update on the Rapid Blood Ammonia Testing Instrument

Update on The Rapid Blood Ammonia Testing Instrument Thomas Veltman, Ph.D.President and CTOAza Technology, Inc.tv@azatechnology.com Aza Technology has made significant progress towards the commercialization of our point-of-care Ammonia Monitoring Device (AMD). In our previous update, we informed readers that we

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Katie – Glutaric Acidemia, Type 1

Our Kids / Katie Glutaric Acidemia, Type 1 – Age 23 I was diagnosed with Glutaric Aciduria Type 1 when I was 6 years old. The doctors tested me for GA1 because my 15-year-old brother had just got diagnosed. Before

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Abbott Formula Update – April 24, 2023

Our Kids / Abbott Formula Update – April 24, 2023 New Updates from Abbott on the availability of metabolic formulas. Full details at metabolicformula.org/supplier-updates.All Abbott metabolic products are now shipping. with the exception of Cyclinex®-2 and Propimex®-2 which are expected

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Cameron, Methylmalonic Acidemia, Cbl C, Age 6 years

Our Kids / Cameron, Methylmalonic Acidemia, Cbl C, Age 6 Methylmalonic Acidemia caused by Cobalamin C deficiency….Before our daughter Cameron was born we had never even heard about this organic acid disorder. From the onset this term changed our lives.

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Nolan, Propionic Acidemia, Age 18 months

Our Kids / Nolan, Propionic Acidemia, Age 18 Months Nolan was born in September 2021 after a healthy, low risk, and uneventful pregnancy. Initially all appeared well, although hindsight is 20/20, right? Nolan is my third child and did not

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