GA-1 Natural History Webinar
February 18, 2026
Our Kids / Thank you to our 2024 Family Forum Sponsors! Two weeks from today we will be hosting our 2024 Family Forum in Pittsburgh, PA! We are so grateful to our sponsors! We could not have hosted our family
Our Kids / Upcoming Zoom Webinar! Meet our newest physician at the NIH – Dr. Carolina Galarreta Aima Friday, May 3, 2024 – 3PM ET (2PM CT) For Spanish speaking families – please register and a Zoom link will be
Our Kids / Hope you can join us in Pittsburgh, PA! June 28-29, 2024 Visit OAA’s website for more information on registration, hotel and scholarships! https://oaanews.org/conferences/2024-fod-oaa-family-forum/
Our Kids / Flok – Ask me Anything – Sunday, March 24, 2024 – 6:00PM Central 7:00PM Eastern Join OAA to meet with leaders of flok (formerly PKU News). We’ll talk about flok programs like their Family Camp, learn about
Our Kids / Rare Disease Day 2024 OAA Tshirt Fundraiser We are stronger together! OAA represents over 20 different organic acidemias.Our #RareDiseaseDay2024 t-shirt design showcase all our rare disorders! Spread the word – purchase a shirt here https://thecoloredribbon.com/oaastore/OAA receives a portion
Our Kids / Update from Michael C., MMA Cbl C Show Case Summary After Math Review Back in March my Game-U instructor, Jovan, nominated me for a showcase. It was on March 17th that I got an email that read
Our Kids / Karli Propionic Acidemia, Age 34 My name is Karli, and I am now 34 years old. I live in my own apartment in Winona Minnesota. My OAA Story had gone out in the OAA Newsletter in 1998
Our Kids / Raechel Methylmalonic Acidemia, Cobalamin C, Age 20 Raechel is a 20 year old sophomore at Christopher Newport University in Virginia. She was born with MMA CblC, before it was part of the newborn screening panel. She was
Fall 2023 OAA Newsletter The digital version of the Fall 2023 Newsletter is available now. Happy Holidays! This issue of the OAA newsletter is packed with exciting developments, information you can use, and moving stories. If you wish to receive
