Our Kids / Rare Disease Day 2025 OAA Tshirt Fundraiser We are stronger together! OAA represents over 20 different organic acidemias.Our #RareDiseaseDay2025 t-shirt design showcase all our rare disorders all over the globe! Spread the word – purchase a shirt here:
Our Kids / 2025 OAA Fundraising Calendar is ready to purchase! https://www.createphotocalendars.com/Shop/organicacidemiaassociation The 2025 OAA Fundraising Calendar is now ready to purchase at the link above! We showcase our beautiful children each year in our fundraising calendar. We thank Raymonde,
NORD’s new Organic Acidemia Patient Assistance Programs November 22, 2024 NORD’s new Organic Acidemia Patient Assistance Program, made possible by the Organic Acidemia Association, provides financial support for essential medications, medical formulas and supplements. Apply online: https://bit.ly/4eDchnhOr email: OA@rarediseases.org
Our Kids / Jonathan MMA, Mut 0, Age 14 Jonathan was diagnosed with methylmalonic acidemia (MMA) at age 2 following a traumatic brain injury that led to the discovery of his condition. As a result of his diagnosis, he lost
Our Kids / Eli, Glutaric Acidemia, Type 1, Age 3 Eli’s condition was diagnosed with the newborn screenings. Grandpa Mike, (me), was there at his birth and I even created a storybook in real time of the event. Eli seemed
Our Kids / Mead Johnson Formula Update – October 2024 Metabolics Supply Patient Association Letter Communication 2nd OCT 2024 FINAL (click here for PDF version)
Our Kids / Mead Johnson Formula Interruption – July 29, 2024 Metabolics Supply Patient Association Letter Communication 29 July 2024 FINAL (click here for PDF version)
