Steph Mustin, Director

(Glutaric Acidemia, Type 1 Parent)

Steph Mustin is the parent of a child with Glutaric Acidemia, Type 1 (GA-1). She also has one additional son who is unaffected. Steph lives in Wisconsin with her husband and their two sons.

She is passionate about raising awareness, building community, and supporting families navigating life with rare metabolic conditions. Through advocacy, education, and connection, she is committed to improving access to resources and outcomes for individuals living with rare diseases.