Jenni Jaehnke, Director

(Propionic Acidemia Parent)

​Jenni Jaehnke is the parent of a son with Propionic Acidemia.  Having had a liver transplant when he was 9 months old, he is now 12 and navigating the pre-teen years with PA.  She has two other sons (unaffected) and resides in Minnesota with her children and husband.  She is passionate about advocating and finding resources for children and adults with rare diseases and disabilities.