Contribute to research.
Your contribution is vital for research! Rare diseases are hard to study because rare populations are smaller. This makes your contribution even more important to developing treatments and cures!
New to the registry?
The Organic Acidemia Natural History Registry is a free platform and a great way to share your journey.
Already a Participant?
Good news! If you have already made an account on the 1.0 platform, you don't need to make another profile! Just activate your account on the new platform through the activation email sent out.
Can't find the activation email or have a new email address? Let us know! Email research@oaanews.org for assistance.
Tell your story.
Researchers and clinicians don't always understand what its like to live with an organic acidemia or to be a caregiver for someone with an organic acidemia. Share your story and the impact of organic acidemias on your life so researchers and clinicians know how to support you best!
Be notified about clinical trials.
Interested in participating in a clinical trial? Let us notify you about upcoming trials you may be eligible for and how to get involved.