From Conversations to Change: Our OAA Internship Insights & Why Your Voice Matters in the OAA Registry
August 14, 2025
Meet Ayla, MMA Mut 0
Moderna featured Ayla’s story for Rare Disease Day 2024. Ayla has MMA Mut 0. (Methylmalonic Acidemia, Mut 0)
Meet our newest physician at the NIH – Dr. Carolina Galarreta Aima
Meet our newest physician at the NIH – Dr. Carolina Galarreta Aima
Flok Presentation for OAA - March 24 2024
Join OAA to meet with leaders of flok (formerly PKU News). We’ll talk about flok programs like their Family Camp, learn about the flok app, and take any questions you may have for the flok team.
OAA Dietitian Chat
ONLINE | June 2023
Both of these OAA advisors helped to develop the Nutritional Guidelines for Propionic Acidemia and will be working on the guidelines for MMA very soon!
OAA Family Chat-Kidney/Liver Transplant Families
ONLINE | APRIL 20, 2023
April is Donate Life Month, and Regan Reeder facilitates a discussion with liver/kidney transplant families.
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