Demo Derby Sibling Honors Brother and others with Organic Acidemias!
August 22, 2023
The leading research platform dedicated to rare diseases, AllStripes makes it easy for patients to contribute to new treatment research from home. We do the work to collect and analyze de-identified medical records to help power faster, better drug development.
The leading research platform dedicated to rare diseases, AllStripes makes it easy for patients to contribute to new treatment research from home. We do the work to collect and analyze de-identified medical records to help power faster, better drug development.
Together with the OAA, we are dedicated to the rare community and advancing treatment and therapy.
The JUMP (Journey to Understand MMA and PA) Study: A Natural History Study
Methylmalonic acidemia (MMA) and propionic acidemia (PA) are extremely rare conditions associated with significant morbidity and mortality. Because they are so rare, there is a great need to better understand these diseases to improve patient care and accelerate drug development.
We have partnered with HemoShear Therapeutics on a study called the JUMP (Journey to Understand MMA and PA) Study to understand the clinical features, natural history and progression of MMA and PA over time. This poster describing the AllStripes platform, JUMP study design and pilot results of five patients was presented at the Genetic Metabolic Dietitians International (GMDI) meeting in May 2022.
JUMP POSTER: Learn More
Website: https://www.allstripes.com/
Email Address: support@allstripes.com
Phone: 415-404-9287
