Madison Lee

HMG Lyase Deficiency

November 3, 2008 – November 10, 2009

“Let the little children come to Me, and do not forbid them; for of such is the kingdom of God.”  Mark 10:14

Dear little Maddie, 

How very softly you tiptoed into my world. Almost silently, only a moment you stayed. But what an imprint your footsteps have left upon our hearts… 

Our beautiful, wonderful daughter, Madison Lee Tremper… she was born on November 3rd, 2008, and diagnosed with HMG Lyase Deficiency following a newborn screening test. 

At three months old, Maddie contracted infant botulism, hospitalizing her for two months. We almost lost her, but thousands of people across the globe prayed for her recovery, and the Lord graciously restored Madison to us. Our “Muffin” came through the experience, with her beautiful, happy smile intact, and we are forever grateful!! Madison became the “Miracle Baby”! 

Maddie did extremely well for the remainder of her first year, with no other health issues. Smart and lively, Maddie was absolutely adorable, and she knew it! Maddie loved to dance, tangoing with daddy, bobbing her little body to the beat, or flopping her hands around to the music while in mommy’s arms. 

She sang too! Mimicking the “Jesus Loves Me” song from her little stuffed lamb, and singing the scales to the “Little Mermaid”… or just jabbering away during hymns in church. We enjoyed our little girl so much. We never took her for granted after that first long stay in the hospital. Every minute with Maddie was a gift and we knew it. 

On November 7th, 2009 Maddie suddenly became sick with the Flu. Three days later, she was called to heaven… just seven days after her first birthday. The Lord tenderly carried our angel home. 

Little Maddie Lee is in heaven with Jesus, more alive today than ever! We know she’s greeting everyone she meets with a cheerful “hi!” (it was her favorite word) and warm smile! While she was with us, Maddie touched the hearts of everyone who knew her with her big, bright personality! She loved the beach, and we enjoyed frequent visits together with her cousins to the Jersey shore, her daddy proudly holding her high on his shoulders as we walked together on the sand. 

Maddie is so dearly missed by her mommy and daddy, Nana, Meema, two grandpas, three great grandparents and numerous aunts, uncles and cousins. Madison Lee taught us to love, trust, and truly understand joy. We are blessed for the year we had with our Angel. We love her more than words can say, and look forward to being reunited again. What a day that will be! 

“But I do not want you to be ignorant… concerning those who have fallen asleep, lest you sorrow as others who have no hope. For if we believe that Jesus died and rose again, even so God will bring with Him those who sleep in Jesus… For the Lord Himself will descend from heaven with a shout, with the voice of the archangel, and with the trumpet of God; And the dead in Christ will rise first: Then we who are alive and remain shall be caught up together with them in the clouds, to meet the Lord in the air. And thus we shall always be with the Lord. Therefore comfort one another with these words.” I Thessalonians 4:13-18 

Maddie’s Aunt Loren put together the tribute at the link below, set to Mark Harris’s song “Find Your Wings”…the same song her Daddy sang at her church dedication on Father’s Day, earlier this year. Our Madison Lee… who changed our lives forever! She will always be with us.

God sent an angel to the earth… 
the sweetest angel too 
And for such a tiny little thing, 
she had so much to do. 
She knew she did not have much time 
upon this earth to stay, 
so she did not waste a second; 
she got started right away. 
Her eyes were bright and sparkly, 
she took in every turn. 
She did not miss a single thing, 
because Angel came to learn! 
God sent her here to touch the 
hearts of those He could not reach… 
She taught them courage, strength and faith, 
because Angel came to teach. 
Her tiny little body 
was so full of God above. 
You felt it when you held her, 
because Maddie came to love. 
In twelve short months she managed 
what many never will. 
When she went home to Jesus, 
her purpose was fulfilled. 
She learned and taught, loved and played, 
she learned her lessons well. 
I know He was so proud of her, 
when she went home to dwell. 
But when I miss her OH-SO-MUCH, 
I can almost hear Him say, 
please understand, her work was done… 
Maddie did not come to stay. 
Violet Hillis (1987) ​

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